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Patients participating in stroke research value forming relationships and visualizing real-world impact

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Patients participating in stroke research value forming relationships and visualizing real-world impact

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New University of Cincinnati research found participants in stroke rehabilitation research prefer an approach that prioritizes shared decision-making, peer relationships and a focus on what they can accomplish over one that emphasizes their deficits.

The research, led by corresponding author Sarah Schwab-Farrell, Ph.D., was recently published in the journal Health Expectations.

Schwab-Farrell specializes in physical therapy and experimental psychology. Her research has focused on carefully designed studies that collect data about how people with disability move, including capabilities of those who have had strokes.

While conducting studies over the past several years, she noticed participants seemed to not find the research as enjoyable or engaging.

"Participants found it interesting to be immersed in virtual reality or use motion capture, but they would leave not really feeling like they understood more about their disability or how the carefully controlled data we collected would practically help other people with disability," said Schwab-Farrell, assistant professor in UC's College of Allied Health Sciences.

Around the same time, Schwab-Farrell was engaging further in disability studies literature that seeks to prioritize the voices of people with disability.

"I gradually started to gain an understanding that if I really wanted to be an impactful disability researcher, I needed to not only study disability but also make sure that disabled voices were an active part of the research created," she said.



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