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In a first-of-its-kind study, researchers have asked people from across Scotland what questions they want scientists to answer about dementia and brain health, in the hope of driving forward better and more meaningful research in the future.

The study—led by the University of Glasgow in collaboration with NHS Research Scotland Neuroprogressive and Dementia Network, Alzheimer's Scotland and the universities of Edinburgh and Dundee—aims to give the public a greater say in how research funding and resources are directed. The work is published in the journal Age and Ageing.

Currently, research agendas are commissioned and influenced by experts in government, policy and funding bodies. This study sought to turn that process around by asking the people who could ultimately benefit from the research what they believed scientists should investigate.

The project is also the first national research priority-setting exercise to consider brain health alongside dementia.

The research team collated thousands of responses from national surveys, focus groups and workshops from people living with, or at risk of, brain health conditions; current and former caregivers; and members of the public and professionals. The results were then refined and ranked to produce two "top 10" lists for future research—one focused on dementia and another on brain health.

While the findings reveal a number of priority research questions from the Scottish public, the researchers noted a particular focus on the need to understand why some people were able to maintain healthy brains into older age.

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